Wednesday, February 6, 2008

Do Symptoms of Post Tubal Ligation Syndrome Improve After Tubal Reversal?

Tubal Reversal Message Board members disagree with the concept that symptoms that they have experienced since their tubal ligation are "just in their heads". They know that their symptoms are not imaginary and are grateful when their symptoms disappear after tubal reversal surgery.

The following is from the Tubal Reversal Message Board

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Posted by 2girlsmama (Member # 12024) on February 05, 2008 04:54 PM:

Hello everyone
My name is Sherry, I have two DDs 4 and 2. The other day my DH said to me over lunch, sometimes I wish we could still have kids.I had been having the thought for awhile, and due to my TL in 2006 could not without reversing. So I go to the internet and found this website. A total godsend!
Then I saw about post tubal ligation syndrome. I was like that is me. My gyn put me on BCP, and I didn't think why? I chalked it up to age and hormones, I'm only 31.My husband and I are talking about do the surgery ASAP. I found out I had the Parkland TL, has anyone had this type, and gotten pregnant, and has the PTLS stopped? TIA
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Posted by HopesAndDreams (Member # 11754) on February 05, 2008 07:05 PM:

Hi Sherry,
Welcome to the board! You will find so much information here. I've hanging around here for almost 5 years, but recently started posting. I'm 33 and I suffer PTLS so bad and have regretted my TL even on the OR table having it done. I just scheduled my surgery for April 11th! I've been saving for the past 3 years and finally able to schedule. Anyway, I didn't have the Parkland TL as you did, but I'm sure someone will chime in and help you with information. Again, welcome to the board and read up as much info as you can here. LOL
Dawn
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Posted by Rhonda Brown, RN (Member # 9485) on February 05, 2008 07:18 PM:

Dear Sherry,
Welcome to the board. We have had many patients that have come for surgery for PTLS and most women report an improvement following the surgery. Not only are they feeling better but they also have a chance for another baby if they desire. Dr. Berger has performed the reversal procedure on many women that had a Parkland tubal ligation. Please feel free to email me if you have any questions or if I can assist you with anything. I look forward to hearing from you and hopefully meeting you soon. By the way, we do have openings at the end of February.
Rhonda RhondaB@tubal-reversal.net
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Posted by 2girlsmama (Member # 12024) on February 05, 2008 10:54 PM:

Thanks for the welcome.
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Posted by momto10 (Member # 11808) on February 05, 2008 11:30 PM:

I had my surgery less than 1 month ago and I am already 80 to 90 % better...

Gwen
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Posted by Matt, ST (Member # 7398) on February 06, 2008 07:59 AM:

Hi Sherry here is a link you should check out that can give you more information about the Parkland procedure. I hope this is helpful for you.
Matt Murphy, ST
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Posted by in-Gods-hands (Member # 11795) on February 06, 2008 08:10 AM:

Sherry welcome to the boards. It is nice to meet you. If you want to you can come over to the waiting room and talk to everyone waiting to get their TR and when you set your big date I will proudly post your name on the list if you would like me to. I wish you all the best. I have talked to many lady's that have improved on the PTLS after the TR. They tell me it is a new day, they are themselves again. I am seeking on in March if Gods works it out and I am getting very excited. Prayers coming your way. Miranda
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Posted by Simonsen6 (Member # 10172) on February 06, 2008 08:14 AM:

Sherry - here is the websites link for your TL you had done and the success rate with it-
http://www.tubal-reversal.net/tubal_ligation_resection.htm

I had PTLS SO bad- I too was put on BC pills- didn't help! They did a D&C because of all the bleeding every week- didn't help. They did a lap and when in to see what was wrong- NOTHING the next step they wanted to do was a hystorectomy (sp?) I'm 34- I had my TL in 2000 and have four kids. I didn't know what was wrong with my body but I knew there was something- every DR just told me it was all in my head and there was nothing wrong. I was causing my body to do these things.... YEA Right!!! After 4 years of hopelessness I found Dr. Bergers website.. There was once again hope for me...
Took a year almost two to get the money - last March 9th, 2007 I had my TR and it was the BEST thnig I have ever done!!! The staff there at chapel hill were AWESOME!!! I wish all dr.'s and staff ran their bussinesses that way! They were friendly and caring and made me feel important!
Dr. Berger was amazing!!! HE talked to me and listened-- he didn't think these symptoms were crazy or in my head- He said he has seen several women with the same thing... The whole experience at chapel hill was wonderful!!
I came out with 5.5 on my rigt and 5.0 on left for my tube lengths. The first cycle after my TR was great!!! Then each month I started feeling my body getting back to normal!! Almost all of my PTLS symptoms were gone and I had my sex drive back and my moods were SO much better!!
In Aug-2007 I went in for my HSG to see if my tubes were open because I still hadn't gotten a BFP-- I followed Dr. bergers instructions to a T -- I was driving my Dr. here crazy because I kept saying Dr. Berger says this and Dr. Berger say that (lol) They were both open and the dye flowed prefectly... IN Jan 2008- I got my first BFP (note- I was one of the later ones to get a BFP then the rest of the March 07 girls) I am now due 09-15-08 and thrilled to death!!!
Finding Dr. Berger and going to chapel hill was the best choice ever!!! I even think if I never got a BFP I would have been happy with the results of the PTLS being gone and Dr, Berger believing there was such a thing...

Good Luck on your journey- Follow your heart and don't wait!!!

Lots of Love,
Becki
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Posted by mama12 (Member # 11260) on February 06, 2008 08:43 AM:

2 girls mama I've had two preganancies, 1 was a MC, which happens. One was an EP I suspect I've had tube width problems on that side, after surgery it was way too skinny. My oldest DD I think had a hang up in that tube, I had repeated Negative preg tests with her and lots of pain on that side, I think just the way my body was made, it's been skinny since birth on that side. So no big deal, they took it out I'm fine. I suspect even without any surgeries I may have had troubles with that tube. My left side is perfect so we are trying again. We are getting excited!!
As far as PTLS my periods now instead of being 9-14 days long, they are now 5 days long.
The exhaustion and pain all month are GONE!!
I've got normal PMS nothing unbearable.
For PTLS it works. I can obviously get pregnant and we will be trying again soon.

Even with the MC and EP I know I've made the right choice getting TR. It's really changed my life I feel alot better now.
Even down to being warmer I used to be cold all of the time, I'm warmer now... It improves symtoms you would'nt think were, or notice until they are gone. Kind of amazing really.
They've tried for years to put me on BC I've even had hysterectomy offered due to the pain...
I've held out, NO pills nothing. I'm glad I did, TR was the answer. It works. I don't know how or why, someday technology will tell us why i'm sure.
There is risk involved but even after everything we've had happen I have to say I'm 100% still completely happy with my choice!!! I wouldn't change a thing.
PTLS is NOT in your head, we can say it to you but I guarantee you'll see after you get surgery. The bleeding I was having was completely out of control it was like hemmoragging every month and now it's at a good normal AF. Like I was before TL.
You'll probably still have some PMS that is normal you are supposed to it means your ovaries are working! But near bleeding to death every month the horrible pain, is just intolerable, Becki I know how it was for you it was the same for me over the top and dysfunctional to say the least.
Thank GOD for Dr. Berger. He is the best!! He changed my life for the better.
2 girls mama at 31??? Seriously... that's the thing you have to question, I know I did that's how I found Dr. Berger. I'm 35. There's just a point where it doesn't make sense anymore. The logic isn't there. It could happen, but not in the numbers it is, there is obviously a link between TL and PTLS.
You've come to the right place.

I also am with Becki, even if we don't have a baby, the PTLS relief is so incredible that I honestly don't care, I know it's horrible to say with everyone TTC, but it is true.
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Posted by 2girlsmama (Member # 12024) on February 06, 2008 10:36 AM:

Thank you all so much. It is so nice to know I'm not alone.I thought I was going crazy.I feel like I'm mean for no reason at all.I just want to cry sometimes, it is like it comes out of nowhere.I thank God for my DH speaking up, were on the fence about another child, but when I saw the posts about the PTLS I felt like a big weight had been lifted off me.Some of my concerns are what are the risks? As my DH says I don't want to lose you.It makes me so mad that the doctors who do these TLs are allowed to not tell us the risks.Thank God for Dr.Berger and his staff.
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Posted by Simonsen6 (Member # 10172) on February 06, 2008 11:04 AM:

2girlsmama
With any surgery there is risk involved- BUT I can tell you this- I have had 6 laps, a TL, TR and my apendix taken out--
This was by far the easiest surgery I have ever had.. They are that good there!!!
My TL was horrible and hurt for several days--
With my Tr I remember getting on the bed and Dr. Berger coming in and said HI said something to the nurses and the next time I knew they were waking me up-- I was SO tired but the asked me how the pain was and I really didn't have any I just wanted to sleep. Dr Berger came in and told me how the surgery went - and my lenghts, I drank a juice box-- IT WAS SO YUMMY!!! Went back to the hotel and slept most the day - I really didn't feel any pain- I did take my med on time and the next day the nurse came in and checked me-- I then drove 7 hours to get home and once I was home I didn't need to take any more meds..
I felt very relaxed and comforted at chapel hill, I knew I was where I was supposed to be and all would be well!!!
I just wish I would find a dr. and staff like Dr. Berger and his staff- They really spoiled me! Now I have high expectations as the service I should get (lol)

My DH was not sure too- he thought it was all a scam and was pretty worried I would have something go wrong or get an infection- you never know about Dr's these days-- But once I had my consult and we met the staff and the care, then Meeting Dr. Berger my DH was impressed just as much as I was and he told me he had a good feeling about this!!!

You know after I go PG and the blood draws and all that protocal - MY DH still says do what ever Dr. Berger suggests because that is what is best!!!!

MY first numbers were 10,333 and the dr. office would not do an ultra sound because they said it was still to early and they wouldn't see anything - dr. Berger says you can at 1500-2500 so we talked about it and my DH said what would Dr. Berger suggest you do-- I said go to the ER
And off we went-- They did teh ultra sound an sure enough you could see the sac and yoke...

I'm tell you - This is the best place you could ever ask for- Dr. Berger is hands down the best DR in the world. I know you and your DH will love him too!!!!

Lots of Love!
Becki
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